024 // An Identity

Life is getting easier day by day. I woke up with more energy than I’ve had in weeks, though the various aches and pains are still present. I was able to mark a few things off my to do list, catch up in my journal and planner, and make time for a podcast or two.

Of course, it all took twice as long as I needed frequent breaks to rest and refocus my mind. This may be my new normal going forward, at least until I can get my physical and emotional strength back to where I was—or better!

Over the past weeks I’ve added and adjusted an extensive and strict schedule of medication, meals, and supplements that I hope will lead to not just continued but accelerated healing. It’s a lot to keep track of. It’s a lot of pills and powders. It’s setting alarms and timers and goals. It’s keeping track of every meal and ounce of liquid that passes your lips or passes out of you.

Chronic illness is has become more than a condition, or a burden, slowly, it’s becoming a perspective, a lifestyle, an identity.

024//366

This has been the longest short week ever and even though I’m so happy to have made it through to Friday and even though I can see the light at the end of the tunnel growing brighter by the minute, I know that this day is going to be a hard one to get through. All my favorite coworkers are out, the ones who make me laugh, the ones who have my back and I’m left feeling a little lost and overwhelmed.


Today was just as hard as I knew it would be. I feel overworked and worn thin. I feel empty and on the verge of tears and I feel angry at myself for being so weak. It shouldn’t be so hard to just work the same as everyone else. Of course, I have to remember I’m working at a deficit in body and in mind, and in addition, I’ve had to give up what little energy and focus I have to things I don’t love with my whole heart. Doing that, day after day eats at the soul.


It’s date night tonight! I finally made it out of work and I’m rushing home now so I can quickly change my clothes and head right back out the door. I need a night of good food, a stiff drink, and some time away with my wife. We’re heading to our favorite movie theater for a showing of Jojo Rabbit, a film she’s been pressing to see but I one have doubts about, but it doesn’t matter because I’ll just be happy to be anywhere at all with her.

Update: She was right, Jojo Rabbit is an amazing film and we should have seen it months ago!