108 // Mind and Pen in Hand

It was a slow start to the morning, but the day is picking up speed fast. I feel good, in general, but there is the threat of falling into a funk. What I mean is that the details of the day aren’t so bothersome, but the overarching essence is dull and irritating.

There’s very little work to do and sometimes that’s nice, but sometimes it can be worse than a full schedule. There’s less reason to feel motivated, and the empty hours tend to drag. There are two things I can do now. I can fill the empty hours with tasks and to-dos, or I can enjoy the privilege of long and languid time. Not everyone has hours they can relax in, hours they get to feel.

I think I’ll try a bit of both. The Pomodoro timer has gotten me through the morning, but I think this afternoon I’d like to cultivate and savor as much silence as I can, while I can. Instead of doing, I’m simply being. Instead of social media scrolling, I’m letting my mind and pen wander together hand in hand.

I’ve been rethinking the way I write here. I’ve been reevaluating my reasons why. I love my little blog, but lately, it has felt too static, too directionless, too impersonal when it was meant to be the very opposite. It was meant to be more.

I’d like to share more of my personality. I want this to be a place I run to again, a place that is mine. Recently, I stumbled across the concept of a “digital garden” and the ways one may differ from a personal website or blog. I’m interested but intimidated. I’d like to have something similar, but simpler. An intermediary between this and something that could grow.

Of course, I have other wide and varied interests. My ego is but one, and that’s what this place is for, but I often think of bigger things too—of humanity, of philosophy and physics. I want to have a place to run to for those thoughts, too. That’s a post for another day though…

On the surface, this is only a repackaging of old ideas and pursuits of mine that I’ve become disillusioned with or distracted from, but not quite. An incremental change, a small shift in perspective, can mean everything, I hope.

I thought my little dream was too small, but now I think small is exactly what I need. That small thing means everything. Now I think that growth is only the process, one that has no end or is an end in itself. An end to which the self is only the beginning, the rest is all exploration of life, day after day, minute by minute, with mind and pen in hand.

108//366

I had a phone appointment with the doctor today and for the first time in a long time it was all good news. Starting tomorrow I can begin tapering off of the medication I have been on the longest and which has done the least for me and next month I can start tapering off of the mild steroid I was put on. By summer I’ll just be taking supplements and going for half hour infusions every other month. It’s a dream come!

Less than six months ago I was worried about how close I was to surgery and losing my colon forever. I was worried about more medications being added and never getting out of the painful flare I was in. I was feeling so down and hopeless, but I’ve got an awesome support team and a body that is always frustrating me but is always fighting to heal the best it can.

On the flip side, I also had to make a series of phone calls to the financial department and the drug company’s patient assistance program to try to work out paperwork problems and payment delays. I’m lucky to be getting help to handle the infusions costs which are thousands of dollars each but the stress of submitting proper forms and making sure the two sides speak and knowing that if something goes wrong, I will be the one held financially responsible is incredibly stressful, and I’m supposed to be watching my stress levels.

I spent the rest of the day in the “creativity room”. I was supposed to be cleaning but spent the time writing instead. That’s a nice change from the norm and feels like a good sign of progress. Perhaps that is the key after all, using writing to procrastinate when I have other things to do rather than doing everything, anything, else rather than writing.