It’s infusion day, again. This one is a little more special. It’s the last of what they call the “loading doses”. After this I go on a more regular schedule of every eight weeks, as long as all the tests they did at the lab beforehand come out stable that is. We still have to see if the drug levels are where they should be and if my white blood cell counts and a few other things are where they should be.

I’m still dealing with some questionable and slowly worsening symptoms, but I’m in contact with my healthcare team and no alarm bells are going off yet. A few more tests have been ordered and I am being asked to hold off on lower the dosage of any of the medication I am currently taking which is a real bummer. I was looking forward to at least one less pill a day for a while.

The center is still a lot quieter than usual. I think non-essential procedures are still being postponed. It was nice to be to be out of the “broom closet” private infusion room and back into the open area with the big bright windows again but the nurse warned me that next time I may not be so lucky.

I know other people need these spaces, but it bothers me that because my infusions are shorter; I have to be shut into a windowless room and every time I bring it up t the staff I’m brushed off. I don’t think they understand that it’s depressing to be there no matter what your condition or how long your infusion takes. I should at least get to see the sun while I’m there.


Went into work.for the first time sense early March. So much has happened and changed since then. Not just the spreading of the virus and the lockdown orders and reopening guidelines, but also with me personally and my relationship to my coworkers and to work as a whole.

The day went much more smoothly than I worried it would. Wearing a mask for four hours is pretty awful and staying six feet apart isn’t as easy as I hoped it would be, but it wasn’t so bad that I felt anxious or frustrated. It will take some practice and some getting used to too.

The day before the district shut down I was promoted, so this was also my first day in my new role. Surprisingly, and quite comfortingly, not much seems to have changed between me and my coworkers. I don’t mean that in a bad way. I mean, I was always respected for my work and all that had ever been missing was the title and the compensation. Finally, everything has fallen into place and work feels more right than ever.

I only stayed for four hours but it exhausted me to be there even a short time. I’m not used to being out of the house for so long or to being around so many people. I was home by lunch, and shortly after I was napping on the couch. I lost hours trying to recover from all the new social interactions and I still don’t feel quite myself yet.


Today is the first Sunday in months that feels like a real Sunday. I’m thinking more about work than I am about the freedom and the goals I had for today.

I’m trying to remember all the goals and joys I had at work. I’m trying to remember who I was two months ago when life was put on hold. I’ve changed a little since then I think. I’ve grown in ways I am only begining to become aware of. This time alone, this loneliness, these hours outside of time where I could belong to myself as fully as any human can hope for, have shown me something I never would have seen, who I and and what kind of life is like to have.

My job is a good one as far as jobs go but it’s not how I’d like to spend my life. I’m not sure what that means, if I could or want to even change it, but it’s s feeling I can’t shake and a fact I cannot unlearn about myself. The future is more uncertain than I can even begin to comprehend right now.


Another lazy day. It’s okay. I feel fine both emotionally and physically. There is a little guilt, a little panic, and a little excitement bubbling below the surface. Next week life begins again, and I am mentally and emotionally freaking out. It’s not so much the work or the people but the changes, the new way of operating and the etiquette that I’m nervous about.

A lot of my anxiety is social. I do not like when I either have to meet new people, or meet people in a new setting, or when for any reason the social norms or expectations are ambiguous.

I’m afraid, I guess, of looking stupid, of offending, of not being liked. It sounds dumb, but in the time of Covid-19 there are expectations about masks, about how close to stand, and about cleaning and hygiene. There are offences over your level of concern or belief about the virus, its origins, and the government’s response.

There is, for people who over think the details most never even notice, a lot to think about and navigate.

I comfort myself by remembering that no one knows how to act or react right now. There is no right or wrong, just whether you care and are willing to correct or stubbornness and recklessness. I do care and I am willing so I should not feel afraid.


It’s hard to believe that in just a few days I will be back at work again. I haven’t seen that place or any of my coworkers or friends in over eight weeks and the idea of seeing them again Monday morning is making me feel increasingly excited, anxious, and afraid. I’m trying not to think about it though. When I do the guilt over not doing or accomplishing more than I have these past few months.

I keep trying to remember that no one expected anything from me but me, that it’s okay I took this time to rest and to sometimes do nothing, and, that considering how quickly and dramatically the world changed there was no way to properly plan or emotionally prepare for a long time away from work and in isolation. I did what I could, and that is good enough.

So tonight, instead of trying to get back to my old sleep habit and routine, I’m staying up late and having a few drinks with my wife. I’ve decided to be even less productive than I have been and to focus on myself for the next few days. No writing. No reading. No big projects. Just doing whatever I feel like for theses next few days. I’ll get back to work when I have to, and not a second before.


I had a good walk this morning. I’m still feeling sore and worrying that I am pushing myself too hard, but I’m committed to giving myself a week of this and seeing if my body can adjust. If, in a week, my joints are locked up and throbbing, then I will cut back but it’s just a walk, a little over two miles a day, and that doesn’t seem like too much to ask from myself.

It’s been nice to get to know my neighborhood in a way I haven’t in all the years I’ve been living here. I’ve walked these same sidewalks before, but to do it day after day, to watch the tress, the lawns, the people, move from one season into another, to experience it in this pandemic where we are all so much more connected with those around us even if we have to keep our distance. I’m seeing it all, even house, intersection, and person, with fresh eyes and understanding.

I’d like to keep this up after I return to work, but I’m not sure what that will look like. I will have to walk earlier, or much, much later. I hope my wife will still go with me too. Of all the things I, we, have been able to do these past months, this is the one thing I want to hold on to.

The rain has been rolling in and out all day and taking my energy and focus in and out with it. I haven’t been able to work on the drafts I started yesterday, but I’m not pushing myself too hard right now, anyway. These are my last days that will belong to me fully for a very long time, if ever again. Yes, I will have weekends always, but even they are rushed and filled with worry and preparation for the workweek.

One thing I have learned during this time is how much of my time and how many of my decisions belong to or are because of work. The truth is nearly all of it was and I have a job that is very clearly separate from my home life. I have a job I can’t take home, so it must be so much worse for others.

These next few days will have no expectations or obligations imposed and going forward there will be, there have to be more days like them.


I just got the call from work asking me if I’d be willing not only to return to work next week, but to coordinate the schedule and duties of my team too. My first task in my new position.

I’m a little scared, but I feel ready to return. I’m scared to get sick, obviously, but I’m also anxious to start building new work habits and to know what things will be like now since there are going to be a lot of changes to the way we work. For now, we’re only allowed to work 4 hours a day and we’ll have to keep our distance from each other which will make things difficult but much of the summer work is done outside anyway so we should be fine.

More than anything though, I’m ready to be around people again. I’m ready to be a a part of something, to feel useful, important, and respected again. It’s amazing how much of work life turned out to be my actual life, and it’s surprising how much I missed what I thought I resented the most.

Honestly, I’ve never been happier with my workplace, my supervisors, or my team than I am right now for their foresight and support through this pandemic. They’ve really taken care of me and motivated me to come back more motivated, willing, and connected to my work than ever,