Tag: 2020

  • 142//366

    It is still surprising how just 4 hours back at work can exhaust me not just mentally but physically. Almost every day this week I have needed to nap for over an hour after returning home. I really hope it will start getting easier soon. I’m losing a lot of time I could be using to read, or write, or listen to podcasts, or even clean my house, all the things I have been doing since the quarantine began. I’d like to make time for them still, even that time must be greatly reduced.

    At least I’ve been keeping up with the evening walks around the neighborhood. Even when I don’t think I’m in the mood or when I don’t think I have the energy, within minutes of getting out there I feel good. I never regret it. I wish I was seeing some difference in the way I feel or my weight on the scale but it seems no matter how much more I move I still seem to gain.

    Starting next week I’m going to move our old elliptical machine into the garage and track my meals, snacks, water, and coffee intake. There is a disconnect somewhere and I mean to find it and start making some progress.

    It’s a question of less and more, I am sure. Less of the bad options and more exercise. Less excuses and more willpower. Less letting my emotions control my consumptions and more mindfulness in every meal and movement.

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  • 141//366

    Mid-week means something again. It’s my second day back at work and I’m already looking forward to the upcoming long weekend. Not because today was a bad day. Quite the opposite, actually.

    Early in the day two of my coworkers and I took a short break for a small grocery run at Walmart. We ended up finding exactly three bottles of hand sanitizer. Later our boss told us she’d just come from Target where Clorox wipes had just been put on the shelves. She gave us all permission to leave then and there to get some. I haven’t been able to buy either product in months. Today felt not just good, but lucky.

    Work was easy enough. I’m largely being left alone to do the projects I’ve tasked myself with. No one is worried or bothered by me. I’m still feeling a little off from my infusion yesterday but on the whole I’m much, much better. It’s just that being out and being around people is still a lot. Even at the infusion center yesterday, I felt withdrawn and irritable by the people around me. I wanted to be left alone.

    I wonder if the anti-social change will be permanent. I suspect not, but I don’t see the scar healing over completely. This experience will change us all, and social interaction might not ever be the same.

    I’ve noticed I get angry at people who are not following guidelines for masks or social distancing in public. I glared at a man in the home improvement store yesterday who didn’t wear a mask and I felt almost disgusted seeing coworkers hugging. I don’t mean to be so harsh and I am actively weighing and adjusting my thoughts, feelings, and beliefs toward others as needed.

    I don’t know what is the right level of anger or what kind of social consequences there should be. I know that I can understand why people do the things they do and I also know that this is new for everyone and quite hard to get used too. I’m trying to be patient and forgiving of the defiance and the disregard, but it is not easy.

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  • 140//366

    It’s infusion day, again. This one is a little more special. It’s the last of what they call the “loading doses”. After this I go on a more regular schedule of every eight weeks, as long as all the tests they did at the lab beforehand come out stable that is. We still have to see if the drug levels are where they should be and if my white blood cell counts and a few other things are where they should be.

    I’m still dealing with some questionable and slowly worsening symptoms, but I’m in contact with my healthcare team and no alarm bells are going off yet. A few more tests have been ordered and I am being asked to hold off on lower the dosage of any of the medication I am currently taking which is a real bummer. I was looking forward to at least one less pill a day for a while.

    The center is still a lot quieter than usual. I think non-essential procedures are still being postponed. It was nice to be to be out of the “broom closet” private infusion room and back into the open area with the big bright windows again but the nurse warned me that next time I may not be so lucky.

    I know other people need these spaces, but it bothers me that because my infusions are shorter; I have to be shut into a windowless room and every time I bring it up t the staff I’m brushed off. I don’t think they understand that it’s depressing to be there no matter what your condition or how long your infusion takes. I should at least get to see the sun while I’m there.

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  • 139//366

    Went into work.for the first time sense early March. So much has happened and changed since then. Not just the spreading of the virus and the lockdown orders and reopening guidelines, but also with me personally and my relationship to my coworkers and to work as a whole.

    The day went much more smoothly than I worried it would. Wearing a mask for four hours is pretty awful and staying six feet apart isn’t as easy as I hoped it would be, but it wasn’t so bad that I felt anxious or frustrated. It will take some practice and some getting used to too.

    The day before the district shut down I was promoted, so this was also my first day in my new role. Surprisingly, and quite comfortingly, not much seems to have changed between me and my coworkers. I don’t mean that in a bad way. I mean, I was always respected for my work and all that had ever been missing was the title and the compensation. Finally, everything has fallen into place and work feels more right than ever.

    I only stayed for four hours but it exhausted me to be there even a short time. I’m not used to being out of the house for so long or to being around so many people. I was home by lunch, and shortly after I was napping on the couch. I lost hours trying to recover from all the new social interactions and I still don’t feel quite myself yet.

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  • 138//366

    Today is the first Sunday in months that feels like a real Sunday. I’m thinking more about work than I am about the freedom and the goals I had for today.

    I’m trying to remember all the goals and joys I had at work. I’m trying to remember who I was two months ago when life was put on hold. I’ve changed a little since then I think. I’ve grown in ways I am only begining to become aware of. This time alone, this loneliness, these hours outside of time where I could belong to myself as fully as any human can hope for, have shown me something I never would have seen, who I and and what kind of life is like to have.

    My job is a good one as far as jobs go but it’s not how I’d like to spend my life. I’m not sure what that means, if I could or want to even change it, but it’s s feeling I can’t shake and a fact I cannot unlearn about myself. The future is more uncertain than I can even begin to comprehend right now.

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  • 137//366

    Another lazy day. It’s okay. I feel fine both emotionally and physically. There is a little guilt, a little panic, and a little excitement bubbling below the surface. Next week life begins again, and I am mentally and emotionally freaking out. It’s not so much the work or the people but the changes, the new way of operating and the etiquette that I’m nervous about.

    A lot of my anxiety is social. I do not like when I either have to meet new people, or meet people in a new setting, or when for any reason the social norms or expectations are ambiguous.

    I’m afraid, I guess, of looking stupid, of offending, of not being liked. It sounds dumb, but in the time of Covid-19 there are expectations about masks, about how close to stand, and about cleaning and hygiene. There are offences over your level of concern or belief about the virus, its origins, and the government’s response.

    There is, for people who over think the details most never even notice, a lot to think about and navigate.

    I comfort myself by remembering that no one knows how to act or react right now. There is no right or wrong, just whether you care and are willing to correct or stubbornness and recklessness. I do care and I am willing so I should not feel afraid.

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  • 136//366

    It’s hard to believe that in just a few days I will be back at work again. I haven’t seen that place or any of my coworkers or friends in over eight weeks and the idea of seeing them again Monday morning is making me feel increasingly excited, anxious, and afraid. I’m trying not to think about it though. When I do the guilt over not doing or accomplishing more than I have these past few months.

    I keep trying to remember that no one expected anything from me but me, that it’s okay I took this time to rest and to sometimes do nothing, and, that considering how quickly and dramatically the world changed there was no way to properly plan or emotionally prepare for a long time away from work and in isolation. I did what I could, and that is good enough.

    So tonight, instead of trying to get back to my old sleep habit and routine, I’m staying up late and having a few drinks with my wife. I’ve decided to be even less productive than I have been and to focus on myself for the next few days. No writing. No reading. No big projects. Just doing whatever I feel like for theses next few days. I’ll get back to work when I have to, and not a second before.

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  • 135//366

    I had a good walk this morning. I’m still feeling sore and worrying that I am pushing myself too hard, but I’m committed to giving myself a week of this and seeing if my body can adjust. If, in a week, my joints are locked up and throbbing, then I will cut back but it’s just a walk, a little over two miles a day, and that doesn’t seem like too much to ask from myself.

    It’s been nice to get to know my neighborhood in a way I haven’t in all the years I’ve been living here. I’ve walked these same sidewalks before, but to do it day after day, to watch the tress, the lawns, the people, move from one season into another, to experience it in this pandemic where we are all so much more connected with those around us even if we have to keep our distance. I’m seeing it all, even house, intersection, and person, with fresh eyes and understanding.

    I’d like to keep this up after I return to work, but I’m not sure what that will look like. I will have to walk earlier, or much, much later. I hope my wife will still go with me too. Of all the things I, we, have been able to do these past months, this is the one thing I want to hold on to.


    The rain has been rolling in and out all day and taking my energy and focus in and out with it. I haven’t been able to work on the drafts I started yesterday, but I’m not pushing myself too hard right now, anyway. These are my last days that will belong to me fully for a very long time, if ever again. Yes, I will have weekends always, but even they are rushed and filled with worry and preparation for the workweek.

    One thing I have learned during this time is how much of my time and how many of my decisions belong to or are because of work. The truth is nearly all of it was and I have a job that is very clearly separate from my home life. I have a job I can’t take home, so it must be so much worse for others.

    These next few days will have no expectations or obligations imposed and going forward there will be, there have to be more days like them.

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  • 134//366

    I just got the call from work asking me if I’d be willing not only to return to work next week, but to coordinate the schedule and duties of my team too. My first task in my new position.

    I’m a little scared, but I feel ready to return. I’m scared to get sick, obviously, but I’m also anxious to start building new work habits and to know what things will be like now since there are going to be a lot of changes to the way we work. For now, we’re only allowed to work 4 hours a day and we’ll have to keep our distance from each other which will make things difficult but much of the summer work is done outside anyway so we should be fine.

    More than anything though, I’m ready to be around people again. I’m ready to be a a part of something, to feel useful, important, and respected again. It’s amazing how much of work life turned out to be my actual life, and it’s surprising how much I missed what I thought I resented the most.

    Honestly, I’ve never been happier with my workplace, my supervisors, or my team than I am right now for their foresight and support through this pandemic. They’ve really taken care of me and motivated me to come back more motivated, willing, and connected to my work than ever,

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  • 133//366

    The clouds were still lingering this morning when I woke up and the cold made me want to skip my morning walk. My wife took the dog without me and I immediately felt disappointed and angry with myself for not having the willpower so, after working my way through some to-do items I’d been putting off, I put on my running shoes and headed out on my own.

    I decided to try out the track at the high school instead of walking the neighborhood. Normally it gets a little too packed to practice social distancing well but I went at just the right time before too many people had the same idea. The clouds moved on and the temperature rose quickly limiting how hard I could push myself but what little running I got to do felt really, really good.

    Back home I took advantage of the motivation I felt and managed some yard work and some real progress cleaning out the basement. Not a bit of writing or reading got done, but it still felt like a productive day. There are more than a few ways to feel accomplished and useful and sometimes it isn’t in creating something but in taking care of yourself, your home, or your family instead.

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  • 132//366

    It’s a gloomy, rainy kind of day today. Neither my wife or I wanted to get up and go for a walk, but the dog was begging so badly I decided to take her on a quick jog around the block. It was misty and miserable out when we went, but I’m glad we did. I’m trying my best to get outside, to get some sun and get moving every day and as good as it feels I still find every excuse not to go.

    A little cold, a little tired, a little sore or grumpy, all to me are reason to skip it but once I’m up and moving I see how flimsy those reasons are and how easy they are to overcome. That is, I’m learning to see through my own bullshit.

    I don’t know if it was the clouds, the late nights lately, the new daily walks, or the IBD flare-up I’m worried is coming on, but I am feeling especially exhausted today. After lunch I found myself overwhelmed by the urge to curl up under a blanket and sleep. I could not have fought it if I’d wanted to. I’m glad I didn’t try though. I need the rest and without it I know I would have spent the evening dragging my useless body around and accomplishing nothing.

    Sometimes we have to fight ourselves to get anything done, and sometimes we have to give into ourselves for the long term good. Much of life lately is spent trying to discern between the two.

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  • 131//366

    I’ve decided that, on mornings when I know I won’t have time to write or do any of the little quiet things I usually do, instead of being angry or resentful, or stressing myself out by trying to grasp even a few minutes of me time, to simply let it go.

    I can’t write when I’m rushed and quiet time is useless when I’m in a bad mood, anyway. So, this morning I went on a nice walk again with my wife and the dog and it made all the difference. There will be more time for what I want to do later, but for now I can walk it out, get a new perspective and still find a sense of accomplishment.

    We’re celebrating Mother’s Day today by stopping by my mother-in-law’s and mother’s house for a quick gift drop off and visit. We’re going to do our best to keep our distance and to watch what we touch and to wash our hands as soon as we get home.

    I have a lot of anxiety about whether this is right or not but I know that eventually we are going have to find a way to see each other, safely. I don’t know if it’s time yet but when will it be time? This new coronavirus isn’t going away. We will have to live with it and for now I think making sure to keep our distance, not touch our faces, and to wash and sanitize after visiting is the best we can do.


    Both visits went very well. I’m happy to see that all of our closest Colorado loved ones are still doing well and to get to talk to them face to face. It was a little jarring though. It’s been so long since we’ve been around other people. We’re not used to the noise or the energy it takes to have a conversation.

    The visits drained me. I don’t mean that in a bad way. I only mean it in the natural and normal way. When I got home, I needed calm and silence again. I couldn’t do anything but lay in bed, eat snacks, and watch TV.

    I keep thinking about what it will be like when I go back to work and hoping that the proposed idea of us working staggard shifts and short hours. I’m sure I’m going to need to ease back into interacting with people. It was exhausting already before. It’s going to be much worse for a while why I adjust.

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  • 130//366

    I got out for another morning walk. The more I get out there the easier and easier it is to find the willpower. It was especially chilly out there and I was very tempted to turn back after half a block but I made it the whole two miles and before I was halfway through the sun was out and I was warmed up. When I got back in I felt really good. Proud, energetic, and optimistic, but things changed pretty fast.

    By midmorning I wasn’t feeling so great. There’s a possibility I’m having a flare up my ulcerative colitis symptoms and I’ve been spiralling ever since. I’m not sure what could be causing it, but I have a feeling it’s the increased physical activity. Stress is a triggering factor and exercise I suppose is a kind of stress on the body.

    It doesn’t really matter though. The issue is more emotional than physical right now. It took me months and multiple medications to get the last flare under control. I was in pain, and often house bound. I do not want to go through that again. Not to mention each flare seems to be worse than the last. The next flare could mean drastic changes to my medication and care regimen. It could mean hospitalization or surgery.

    But I’m getting ahead of myself and doing the exact opposite of what I should be doing right now. I’m stressing myself out over unknowns and giving my immune system all the more reason to attack. So, after tonight, I have to relax. I have to rest, eat right, meditate, and think happy and hopeful thoughts only.

    I have to play the wait and see game for a few days and sometimes that can be the hardest thing to do. The second hardest is admitting you need help. Admitting you have to take a step back, again, and that there progress you’ve made had been undone and now your health depends on whether or not you have the strength to face that.

    But even that acceptance is a week away at least. For now, I’ll be watchful, caring, and gentle with myself for some time.

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  • 129//366

    This morning was another rough start. I woke up still exhausted, though I don’t know why I should be. I fell asleep before 8:00 last night, a full two hours before I usually do, and I still woke up late and felt so groggy I skipped going on a morning walk with my wife.

    A few cups of coffee, a light warm up work out, and the sun coming out from behind the clouds turned my mood around, and just before noon I was ready to venture out for a few errands. We started at the lawn and garden place up the street. Normally I love browsing this place but there were way too many people which made it very hard to maintain six feet of distance and made me so anxious I couldn’t enjoy the trip at all.

    The other stores we had to go to were much better but seeing everyone wearing masks and waiting six feet apart in long lines to enter a store and to check out makes me feel like I’m living in a dystopian novel and all I can think about is when or whether the world will ever look the same again. It’s good to get out of the house, but it feels much better, and safer to be back home.

    Not much else has been accomplished since. I spent the rest of the day updating post tags and catching up on old articles I’d been meaning to read. Boring things, but at least I tried not to pay too much attention to the TV. I’m alternating between sitting at the kitchen island and sitting at my desk in the “creativity room”. Very soon I’ll be back at work and the days won’t be my own anymore so I figured I better start practicing writing and reading in the evenings again.

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