025 // Bad News Day

It’s a lot to get into, but some news I had been dreading to receive, news I had just begun to hope wouldn’t come after all, came today. Long story short, my medication is damaging my liver and even though it is keeping the inflammation in my colon at bay, I will have have to cease taking it and start something new.

If you live in America and you have a chronic illness you’ll have some idea how stressful it is to deal with insurance companies during treatment changes. First, there must be a cost analysis done to find out if, and how much of the cost they will cover. This medication will more than likely cost thousands of dollars a dose, the same as my last medication. How much my insurance will cover and how much I can get assistance for the rest will take time to work out and there is a possibility that it won’t.

In the meantime, I a ball of stress and anxiety, a state that actually triggers and worsens my symptoms. What if we can’t afford the new medication? What if I am allergic to the new medication? What if the new medication doesn’t work? What if, while I’m waiting for the cost analysis and the financial assistance, my symptoms return or worsen? What if, what if, what if…?

Of course, worrying does nothing, and like all things, I just have to wait for answers to come and deal with them as they do.

But that is easier said than done.


These entries are inspired by the journal posts of Thord D. Hedengren

2 thoughts on “025 // Bad News Day

  1. I understand all too well about the thousands of dollars one dose of medication can cost. I am sorry that you are dealing with this. The stress does not help to keep the inflammation at bay, that’s for sure. It is always scary switching to a new medication. Last year, after being on Remicade for 8 years, I switched to Entyvio. I had the same worries of will I be allergic. Will this medication keep me in remission. Will I be able to be on this medication as long, if not longer than my previous medication. I know that there is not anything that I can do to help your situation, but I am here for any support that you may need.

    Wow! That reply was quite personal, even so, I still mean it. 🙂

    Like

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