214 // A Brief Normalcy

Today is a better day. I’m feeling more solid, physically, more present and connected to my body, stronger. This is always the first sign of healing. Before I can see tangible improvement, before I can see or feel exactly what and where I have begun to heal, I feel it in my spirit. A corner has been turned, but I know that doesn’t mean that the journey won’t be agonizingly slow and that setbacks are not on the horizon.

And so, because I was feeling a little better and because I have been feeling so down, I decided to venture out with my wife for some shopping therapy. The weather was gorgeous and having a few new things for the home made a big difference in my mood.

Of course there were tough moments. This ulcerative colitis flare has progressed so far that I’m left with a great amount of fatigue, pain, discomfort, and anxiety almost all of the time. There were moments today between all the positivity and the hopefulness, when I wanted to break down, but I breathed through it. I sat with my pain and fear and fatigue and I gave it space to breathe too and each moved to let me pass for a time and I am grateful for the brief feeling of normalcy.

Unfortunately, the outing was still just slightly little more than I could handle and when I got home, I crawled right back into the bed to recover.

The evening is settling in now. We have some rain clouds cruising in from the mountains, but they don’t appear too threatening. I’m looking forward to a calming and cleansing rain. Much of my cleaning was done last night and I’m basking in the peace of knowing I have nothing I have to do and nothing anyone is asking of me. I may write for a while or work cut and compile a new collage piece.

Or maybe I won’t push myself to make, or read, or write anything at all. Maybe I’ll give myself permission to just lay on this couch, watch some mindless TV, and enjoy a couple of glasses of wine with my wife before turning in early. I deserve it. I need it.

Lockdown

Lockdown // Anderson .Paak

You should’ve been downtown (Down)
The people are risin’ (Look around)
We thought it was a lockdown (Lockdown)
They opened the fire (Had to get low, fire)
Them bullets was flyin’ (Down, down)
Who said it was a lockdown? Goddamn lie (Ooh-wee)

Lockdown, we ain’t gotta stop ’cause they tell us to
Downtown, where I got popped with the rubber bullet
Tre pound, got it in my name now, I’ma shoot it
Lockdown, we ain’t gotta stop ’cause they tell us to
Downtown

This is a Pattern

Rep. Alexandria Ocasio-Cortez (D-NY) Responds to Rep. Ted Yoho (R-FL)

“And so what I believe is that having a daughter does not make a man decent. Having a wife does not make a decent man. Treating people with dignity and respect makes a decent man, and when a decent man messes up as we all are bound to do, he tries his best and does apologize. Not to save face, not to win a vote. He apologizes genuinely to repair and acknowledge the harm done so that we can all move on.”

I have watched this video through dozens of times just in the past couple of days. As frustrated and infuriated as I am with what Rep. Alexandria Ocasio-Cortez had to go through I’m happy she was able to respond in this way.

She took her personal but not at all unique experience and brought it to the national stage in a way we can all identify with, internalize, and learn from. She is showing us all how to stand up and speak up, how to hold others accountable for dehumanizing language, and articulated perfectly the very real harm that this language inflicts on all of us.

I only hope Rep. Ted Yoho and men like him learned something too…

Creation and Recreation

Never before had I so realized the miracle of the continued race, the creation and recreation, the weaving and changing and handing down a fleshly elements. That a child should be born of its mother, that it should grow and clothe itself (we know not how) with humanity, and put on inherited looks, and turn its head with the manner of one ascendant, and offer its hand with a gesture of another, are wonders dulled for us by repetition.”

— Robert Louis Stevenson, Olalla

Don’t Complain

Sister, there are people who went to sleep all over the world last night, poor and rich and white and black, but they will never wake again. Sister, those who expected to rise did not, their beds became their cooling boards, and their blankets became their winding sheets. And those dead folks would give anything, anything at all, for just five minutes of this weather or ten minutes of that plowing that person was grumbling about. So you watch yourself about complaining, Sister. What you’re supposed to do when you don’t like a thing is change it. If you can’t change it, change the way you think about it. Don’t complain.”

— Maya Angelou (via swissmiss)

210 // Struggling to Recover

Today isn’t at all like yesterday.

My morning meditation didn’t feel very smooth. My stomach was hurting and couldn’t get my mind away from it to focus on the breath. At first I was upset about it. I felt like I had not only failed but wasted the session too, but looking back I realize that every session doesn’t have to go well, nor should it. Encountering difficulty is a chance to learn and grow.

At the time, though, I struggled to recover. I feel worse physically than yesterday. I got less sleep and my symptoms are flaring badly again. The good news is my doctor is allowing me to go back on steroids, which I guess is also bad news too. I’m not looking forward to the side effects, but I’m looking forward to having energy and feeling good again.

I’d planned to go to work, sit at my desk with my headphones in, and work through my tasks and projects one by one, alone, but as soon as I got there I was told my workplace was being taken over by another staff member and instead I would have to sit in an open area where there was nothing but distraction. I got very little accomplished but I will admit, being forced to interact with people did help my mood and made me feel a little less isolated and down. I needed some conversation, some laughs, and lunch with friends.

The afternoon and evening flew by far too fast. I didn’t take my usual hour or more nap, but I’m wishing I had. Maybe I’ll sleep better tonight than I did last night when anxiety had my stomach in knots and my mind running late into the night and well before sunrise. Maybe tomorrow can be more like yesterday than today was, if I start right now?

209 // I Already Feel Lighter

Up and down, back and forth, round and round, everything is swinging wildly, yo-yoing, hitting roller coaster highs and lows both thrilling and terrifying.

My health is the main culprit. Perhaps I could better orient myself between work, tasks, rest, and relationships if physical pain, worry, and loneliness weren’t always obscuring my sight and way. Not all days are bad but lately it feels like I get two, three, sometimes five days or more in a row of worse and worse and worse before I get just one where I’m feeling somewhat normal and capable. Luckily today is one of those those good days.

I woke up this morning with more energy than I’ve had in over a week now. I was up by 4:30 without grogginess or fatigue and even got a 10-minute meditation session in on Headspace before work.

Over the weekend I found out they are offering free subscriptions for educators including both teachers and administration and signed up right away. I’m hoping to get my wife and perhaps a couple of friends to build the habit with me. I could use the motivation and the accountability check.

It’s been just three days since I picked up the old habit and I already feel lighter and looser. You ever feel like you didn’t know some part of your body was hurting until you laid down to rest it? That is how mediation feels to me. I’m always so tightly wound but I don’t realize it until I take the time to scan my body, to feel it’s weight and movement, and connect it with space and gravity around me. It’s more than physical. I have to release the tension in my heart the same as I would for my shoulders or neck.

I spent all my time before lunch in a long brainstorming session with my team. We’ve been meeting every few days to share ideas, make plans, complete projects and generally spread and share our enthusiasm. I’ve enjoyed these meetings but the additional workload is starting to stress me. I have to keep reminding myself that I’ve got an amazing team behind me and that no one is going to let me fail. Through them I feel more secure and more confident in my work than ever.

The rest of the week is a busy one and already tasks are being pushed and postponed to make room. I’m blocking in time for writing, reading, and creating too and taking advantage of early morning hours to make the most of my time. I hope every day will feel like this one but even if they don’t, at least I got one.

P.S. Headspace is also free for healthcare workers, free for a year if you are unemployed, and heavily discounted for students. I’m not affiliated in any way with Headspace. I just love the app and think everyone can benefit from daily meditation.